Marx says Emanuel was born with a rare disorder called polyostotic fibrous dysplasia, which causes his body to develop scarlike tissue instead of bone. The disorder often causes fractures and deformities of the arms, legs and skull.
Emanuel’s father, Noel Zayas, says the tumor started as a pimple when the boy hit puberty and grew quickly over a few months. The tumor is benign but threatens to fracture the boy’s neck and suffocate him.
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