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Wednesday 11 March 2020

Toddler is bullied by trolls over rare skin condition which makes him look yellow

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The parents of a one-year-old boy with a rare skin condition are so distraught by cruel trolls they avoid going out in public.

Toddler Logan Webb has Alagille syndrome, a genetic disorder that causes liver damage and bile to be absorbed by the body and makes his skin turn yellow.

His mum Gemma Channing, 25, and dad Lloyd Webb, 27, say his appearance makes it impossible to have a normal day out and that rude strangers have even called him a "minion baby".

Others have told the couple, from Exeter, that he looks jaundiced, or like Shrek or the Grinch.


"I always have people asking me what's wrong with him and that I should take him to hospital because he has jaundice," Gemma says.

"We get lots of people saying negative things such as asking why he looks like a minion and that he looks like Shrek or the Grinch.

"Every time we go out as a family there's a constant reminder about Logan's condition.

"We can't just leave the house and have a normal day out, we have to be stopped and reminded by someone about how poorly he is."

On one occasion, a stranger even insisted that Gemma should immediately take her son to hospital.
"We were in Sainsbury's with Logan doing a quick food shop and minding our own business," she explains.

"We got into the car and were about to drive off when a woman started banging on the window.

"Rather than asking us about Logan she had called a paramedic who happened to be in the car park to assess Logan.

"She then proceeded to tell us that we should take Logan to the hospital as he was clearly unwell.

"We tried to explain to her that he is being cared for and has a complex condition.

"She just stood there and said it if was her son she'd take him to hospital.

"The paramedic understood what we were saying but it was so embarrassing.

"We have horrible comments and questions whenever we leave the house. Sometimes it just breaks your heart."

Logan was diagnosed with Alagille syndrome soon after he was born in December 2018.

His parents have to give him a daily dosage of 10 different medications, as the condition means his liver doesn't function properly and that his blood is only half oxygenated.

 Gemma and Lloyd are now trying to raise £2,000 on GoFundMe to pay for Logan to travel to California to see an Alagille syndrome specialist.

It is hoped he can have open heart surgery before he goes onto the list for a liver transplant.




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